HEALING Polycystic kidney disease one bite at a time.

04 – Getting Your Data

Good morning! Before I continue with sharing the other molecular triggers, I will remind you of something very important. Getting your data. What data? The data on YOUR kidneys.

The next time you visit your nephrologist (maybe you should make an appointment today), get an ultrasound and ask for the following data: – size of each kidney in inches or centimeters – size of one easy-to-spot cyst on each side Be persistent. Your neph might think it is unnecessary work to get these exact measures. For all he knows, there is nothing you can do about it anyway. ๐Ÿ˜‰ He might even say he can not make out where the kidney even is anymore. Be persistent. Tell him you want to track how you are doing and it is important for you to get numbers.

A printout of an easy-to-spot area would be great, too, for comparison next year. The accuracy of ultrasound is not as high as an MRI so take these results with a grain of salt.

So now you have 4 numbers and maybe even a picture. Get your report. And get a printout of all your past reports. take them home and try to understand how fast or slow your kidneys have been growing in the past, so you will know when they are growing slower the next year. (or even shrinking). Your nephrologist has never experienced shrinking PKD kidneys, so it might take a couple of years, once you are in remission, for him to recognize that something is happening.

Half a year, or one year later, visit your nephrologist again and get the same numbers. in fact, make an appointment when you are in his office. Take note of all the changes you are implementing until your next visit, so you will know what worked, and what didn’t work. Report your progress here in a couple of monthsand let’s all see how you are doing! If you apply all the nutrition and supplement principles on this page, you have a great chance of improving your situation. Not perfection, but progress is the key.
Get educated. Be persistent- and heal well!